HELP Spina bifida occulta MRI Feedback Needed Tethered Cord? Plus more?
Could anyone please give me some feedback on my back? Here is my MRI results, I have a Tethered Cord, Deformed Tailbone, which turnes 50 degrease the other way and is sticking out like a tail on the bottom of my spine. There is a dural sinus Hole? The tail bone is literally sticking out along the side of the hole. I was told I have Spina-bifida occulta when I was a child but My medical records are no where to be found!
I have No feeling in my Left end toes and cannot move them apart, I experience bouts of Burning under my feet and severe burning and throbbing on my calves, I have numbness and tingling and burning on both feet and sometimes in my legs below my knees.
I also am having numbness in my hands.
I am only 32 years only and am scared to death!
If anyone out there can help me in lamen terms I would greatly appriciate it. I have been refered to a neurosurgion and cannot get in there until the 28th of this month.
I am in severe pain, My back feels like it is going to break in half! and I cant sit down!
Please help.. Here is the Original word for word MRI results:
**************************************** **************************************** **************************************** **************************************** ******************************
MRI L SPINE WO Cnt {08/07/2008 20:43}
{Status: Final}
HISTORY: LOWER BACK PAIN W/ABN X-RAYS;DDDTDIST-. DEGENERATIVE DISC DISEASE
DOB: / / /
EXAMINATION: LUMBAR SPINE MRI WITHOUT INTRAVENOUS CONTRAST.
TECKNIQUE: Multiplanar MR imaging of the lumbar spine was performed utilizing a 1.5 Tesla system. Sagittal and axial T1 and T2 images obtained from the lower thoracic spine to below the lumbar sacral junction.
FINDINGS:
The stdy is of good technical quality.
fot the purposes of this dictation there are presumed to be five lumbar vertebrae. Numbering is based upon the anatomic configuration of the lumbosacral junction. Please correlate with the plain film radiographs prior to intervention.
Retroperitoneum: There is a 1.3 cm cyst in the left kidney and a smaller cyst in the right kidney.
Vertebral bodies: There is a rudimentary disc space at L3 - L4 with decreased size of the vertebral endplates at this level.
Consistent with congenital partial interbody fusion at L3 - L4 Alignment is anatomic. There are no findings to support spondylolisthesis Or spondylolysis.
Conus: The spinal cord and conus extends down to the level of S 2 or lower, Consistent with a tethered cord. There is a small syrinx within the cord at the level of L3. At the level of L4 and 5, there is a prominent cleft in the ventral aspect of the cord. There is no open dysraphism in the lumbar or upper sacral spinal canal.
L1/2: No disc protrusion, spinal canal or foraminal stenosis.
L2/3: No disc protrusion, spinal canal or foraminal stenosis.
L3/4 As mentioned above there is congenital partial fusion between the L3 and 4 vertebral bodies. The facet joints are rudimentary and probably partially fused as well. The developmental anomaly results in moderate stenosis of the right and milder stenosis of the left foramen. Spinal canal is widely patent.
L4/5: There is no disc protrusion or spinal canal stenosis. There is mild to moderate facet arthropathy and mild foraminal narrowing.
L5/S1: There is no disc protrusion, Spinal canal or forminal stenosis, there is mild facet arthropathy.
The perineural cyst is seen at S 2 on the left. Usually these are not clinically significant.
IMPRESSION:
1. Tethered spinal cord extending to the upper-mid sacrum. There is a small syrinx in the cord at the level of L3 with a prominent ventral cleft and Mild diastematomyelia in the cord at L4 and 5.
2. Congenital partial vertebral body and posterior element fusion at L3 - L4 as described above with associated right greater then left foraminal stenosis. Mild degenerative changes in the lower lumbar spine.
**************************************** **************************************** **************************************** **************************************** ********************************
{ THIS IS MY PELVIS MRI}
**************************************** **************************************** **************************************** **************************************** ********************************
MRI PELVIS WO CNT {08/07/2008 20:44}
(Status: Final)
HISTORY: LOWER BACK PAIN W/ABN X-RAYS; DDD T DIST-, DEGENERATIVE DISC DISEASE
DOB: ///
DATE/TIME OF PRIOR: MRI L Spine WO Cnt from 08/07/08 20:43
EXAMINATION: PELVIS MRI WITHOUT INTRAVENOUS CONTRAST.
TECHNIQUE: Multiplanar MR imaging of the pelvis was performed with a 1.5T system. Axial, sagittal and coronal sequences were performed through the pelvis as indicated by the clinical history and region of concern.
FINDINGS: History of a 32-year-old female with low back pain.
Comparison is made to the MRI scan of the lumbar spine which shows a low lying spinal cord down to the L5 level compatible with a tethered spinal cord. The distal thecal sac is relatively wide or generous in size and the thecal sac extends distally into the sacrum farther then is usual. There is also sacral cyst present at the S2 level on both sides.
The MRI study of the pelvis demonstrates the lumbar vertebra to have minor curvature toward the left side or minimal scoliosis. The S1 joints appear symmetric, hip joints appear symmetric.
The urinary bladder is mildly distended and appears unremarkable. The uterus is either small or absent and no pelvic masses or fluid collections are found.
In the sagittal view the thecal sac is visualized and terminates at the junction of the sacrum and coccyx relatively ditally. The posterior bony wall of the spinal canal may be deficient distally over the distal tip of the thecal sac. The sacrum is Deformed and the tip extends posteriorly toward the scan. No posterior meningocele or a definite tract is seen. A small sacral dimple or tract however could be present and the difficult to identified.
IMPRESSION:
MRI study of the pelvis demonstrates evidence of a tethered or low-lying spinal cord tip at approximately the L5 level. The thecal sac extends distally into the sacrum almost the the level of the coccyx. There are sacral cyst present. The posterior bony wall of the sacrum may be mildly deficient. Which may represent a congenital anomaly versus trumatic deformity.
No sacral meningoceles or lipomas are identified. A small sacral dimple or tract at the level of the deformed coccyx is questioned. Clinical correlation is suggested.
No pelvic masses are seen, Uterus is either small or absent. The ovaries are difficult to detect. The urinary bladder appears unremarkable.
See MRI report of the lumbar spine.
**************************************** **************************************** **************************************** **************************************** *********************************
Thanks so much!
Spina Bifida Occulta?
... , it lasted for weeks.) She was born at 37 weeks, has lots of problems breathing for the first 2 days. She had a strange looking 'dimple' at ... search on the 'net for birth defects. Spina Bifida Occulta is what it sounds like to me. Does anyone know anything more about it? Have a child with it? Does ...
hip pain and spina bifida occulta/scoliosis
... family dr. refer her to orthopedic dr. Thus far he hasn't found anything that he thinks is significant; however, she does have spina bifida occulta and a small degree of scolosis, ... tears when touched. Could any of this be related to Spina Bifida Occulta? She has had x-rays, MRI and the next test is a ...
Child with Spina Bifida Occulta
... 3 yr old son was diagnosed with spina bifida occulta at 18 months and has since been also diagnosed with kidney reflexs ... the dermal sinus tract. In the last week he has started having problems again and no matter what I do nothing seems to help. I have been giving him a capful of mirlax daily for the ...
Living with Congenital Scolosis and Spina bifida occulta
Hi, I am a 23 year old female attending nursing school. I was diagnosed with a tethered spinal cord(spina bifida occulta) at 18months of age. Subsequently i was also diagnosed with congenital scoliosis. I am missing a bone in my lumbar spine (L5 ...
Spina Bifida Occulta
I just found out that I have spina bifida occulta. I am not really concerned with the effect it has on me, since I have obviously had no trouble previously. My concern is that my hubby and I are trying to conceive. Has anyone here been in this situation? I do not know the likelyhood of passing this ...
Spina Bifida Occulta - After surgery of tethered cord
... surgery corrected both problems and he has been doing great so far. However, we were told that there is a 60% chance his cord will re-tether ... neurosugeon hasnt seen this before. X-rays show nothing so it is likely an issue with spinal cord nerves. Has anyone else experienced this or other related ...
MRI shows probable tethered cord:(
My soon to be 7 year old son just got MRI results showing tethered cord, after dealing with bowel and bladder incontinence forever. The last couple weeks he mentioned a foot feeling weak and hard to walk on, or tingling in the foot. Our appointment with the ...
hip pain and spina bifida occulta
... it throb s. doc arranged for an xray it came back, my hip s clear but i have spina biffida occulta? could that be the cause of my pain in my hip. also i m ... if i sit for a while again throbbing pain. My doc thinks the problem with my hip is to do with when i was pregnant i had a lot of pain with hip ...
Pars defect & partial spina bifida-spinal fusion possibly needed-VERY scared!
Hello. I was diagnosed with partial spina bifida and a Pars defect in L5 when I was about 13 (I'm now 21). At the time I had been in a ... and a few pain pills I felt good as new as long as I took it easy. Since then I hadn't had any problems until last year when I was in a car accident. I went to my ...
Mri Results
... a good day. The doctor rang my mri results through the other day, i did not really understand alot of what she said so i am going to ask for a copy of my Mri report. She said i have narrowing disc space L5-S1, bulging disc at S1 and spina bifida occulta at S1. She is sending me for physiotherapy ...
keep smiling
... I have thrown another spanner in the works today by asking if spina bifida occulta could have been the cause of any of my back problems also i wonder if this is why the surgeon failed to get the needle through to perform a caudal nerve block injection.(((who knows))). ...
What Am I Looking At Here?
... left hip was the bad one. Is there a pattern here? Spina Bifida occulta Degenerative disc disease Bone spurs on ... I plan to tell the doctor when I go back in 2 weeks that I think I need something stronger. Problem is, I am a little afraid to take the hydrocodone again. It helps the pain, but ...
Spina Bifida
... a month ago I went to a new doctor and he told me that I have spina bifida and that I've had it since I was born without a doubt. He ... I noticed it for myself, they still insisted that I had nothing wrong, when in fact I do have spina bifida. So my question is... where do I go from here? I'm tired of ...
Such Pain has Returned with a Vengeance
... , i have slight narrowing of the disc space L5-S1 and was born with Spina Bifida Occulta which was picked up from an x-ray as was ... if still bad popping to see my doctor. I have only ever had the x-ray on my back which picked up the above problems. Does this pain seem familiar to many ...
Pain flared up again since standing for long periods of time.
... mild narrowing of the disk space L5-S1 and spina bifida occulta at the same place. I used to do a job which involved a ... back pain has flared up again since doing this job. Is this typical of the problem i have and does anyone else suffer this way? Any advice would be appreciated. Thanks ShazzaUk
Why am I hurting?
... am terming it a partially lumbarized S1 with spina bifida occulta. I would need a chest x-ray or ... images reveal a normal appearance to the distal thoracic cord and conus. No significant intramedullary vertebral ... contents. Generally, no hard copy films of MRIs/CTs are generated. All images are ...
Cavas feet,spondilyothentisis,scoliosis,occult a
... them longer, spondilyothentisis(slip disk in lower back), mild scoliosis, spina bifida occulta. The occulta isn't the same as the plain spina bifida. The problem is, we can't even go grocery shopping without her having to sit down somewhere in the store because ...
Is this normal? 8 weeks post Micro-d
... . The procedure went well, however during the surgery it was discovered that I have spina bifida occulta so there was no bone to be cut, basically I ... pretty well controlled with the neurontin, with an occasional vicodin. I had another MRI Tuesday and am waiting for the results, my surgeon ...
Spina Bifida and bowel problems
... know whether anyone can advise me. I'm 44 years of age and have been disabled from birth with spina bifida, which basically means I'm totally paralysed from more or less the ribs down. This of course includes my bowels, and the only way I can avoid ...
spina bifida siblings
... out there is a sibling to a spina bifida victim. I have some strange symptoms like severe headaches of pressure, water retention around my face, ... (because of insurance adn PPO's) He is using me for a guinea pig and gives me prescriptions with worse side effects that my problem!
Intro
Hi Everyone, My name is Lisa, I'm mom to two boys 4 & 1. My 1 yo has spina bifida occulta with a lipomeningocele and a tethered cord. We were unaware of any problems until his newborn exam. He has now had two mris and several dr appointments to follow the nerve ...
Diagnosis from x-ray - what next?
... suffering for good few years on and off i was sent for an x-ray and the findings were:- slight degenerative narrowing of the disc space L5-S1 Spina Bifida Occulta at S1 My pain symptoms have been mostly lower back area and legs. It is a struggle to bend over to ...
Transitional Vertebrae
Hi, I was hoping for some information, I just got x-rays of my spine and the report says there is transitional vertebra with attempted lumbarization of the left side of S1. The right side is sacrazlized. A spina bifida occulta is present. Can anyone tell me what this means? Thank you, Christy